Thursday, July 26, 2012

FINALLY ONE DIAGNOSIS DOWN

MEDICAL UPDATE: I have gone through some kind of medical testing for the last 4 years with one problem or another, My biggest problems being my periods (which I have had problems since I was almost 10) have progressively gotten worse through the years, I have been on about 30 different  hormone pills that have failed, numerous surgeries and have miscarried every other pregnancy. Last Dec. they did a a Lapro and  a Cystoscopy checking out my abdominal area, mainly my outside of the uterus and ovaries etc....they didn't see anything but a few cysts (which I have always had) and some scarring (from past surgeries) well since then, I have just toughened up and dealt with my problems and thought maybe I was being a little crazy. Well as the months go on my symptoms are still getting worse and worse so I decided to start documenting and even taking pictures (I know that is gross but when I try to explain what I am going through, it sounds unreal to most people and they just think it can't really be that bad, well guess what, it really is) I bleed about 3 weeks out of the month, and its very much abnormal, with clots, tissue and massive amounts of blood. I took all my info again back into the Dr's a few weeks ago, and as soon as she saw the pictures, she said it is absolutely not normal, they did blood work and scheduled an internal ultra sound with saline this past week and then I met with the doctor afterwards. She said my blood count is very very low (and that if we let things go, it will get dangerously low, which obviously we know why this is) she went over the pictures with me, which in the ultra sound there are black spots shown throughout the uterus, and my uterus is soft  and along with my symptoms I have ADENOMYSOIS: which is similar to endometriosis, but its on the inside, the lining of my uterus has grown into the muscle fibers of my uterine wall, so each month when I shed that lining with a period all of the spots (which were a lot on the ultra sound) that are throughout my muscle wall are shedding and bleeding (in between the muscle fibers) which is causing the massive amount of stuff to come out of me and severe pain and swelling. I guess with this, she said that hormone pills don't really help it, there is one medicine that is a series of injections that I could take but it will throw me into menopause and its only shown to help in some cases and this problem is just going to get worse if we let it go. With this condition a hysterectomy is the most common way to fix it. She asked if we were done having kids and I told her we felt like there was one more (which I am nervous because this one would be the miscarriage if I keep the past pattern) but I still feel strongly this is what we are supposed to try and do. If we happen to be blessed to get pregnant and have our last baby, than 6 weeks after delivering I will have a hysterectomy done. The Dr. thought this was a good plan, but she suggested getting pregnant sooner, so that my periods would stop and hopefully help my blood counts. This all was a lot of information to deal with and I was a bit emotional all week, and I of course came home and researched everything and everything I read just confirmed what the doctor said. Don't get me wrong, I have many blessings to be thankful for, especially with all of my problems I have had, I did get 5 beautiful children out of it and although we would not get pregnant again after the 6th, there is just something sad to me about my major female organ being gone, but I know in the end it will bring me much relief to my body physically and I can start to feel better without these problems over-ruling my life. They will only remove my uterus and leave my ovaries so she assured me the only thing that will change is that I wont have any more pain and severe prolonged bleeding, so after Josh and I talked about it, this is the plan. After we run the marathon we will try for our last baby (and pray that it wont be another miscarriage) and take things one day at a time until surgery. I truly am so grateful for my life experiences and the lessons I have learned along the way, even with the biggest trials, much sadness and great losses, we still have SO much to be thankful for, if we just take the time to recognize them and I am definitely counting my blessings!! (even though when the time comes for surgery, I will still be a little bit of an emotional wreck :)

2 comments:

Sarah said...

Hey Jen! I'm just now reading your post and so sorry you've had to go through all of this. I know I've said it a million times, but you really are superwoman :) SO strong, so kind, and so faithful through it all! My mom actually had a very similar condition. But hers didn't get bad until after she had 4 (of 7) kids. She thought she was just crazy and maybe it wasn't "As bad" as she thought it was. Anyways after she had her 7th baby it got REALLY bad so she finally did a hysterectomy and she was so glad she did. Like you said, it's hard to know you won't have your major female organ, but it has served it's purpose and you have used it for a really great thing-actually 5, maybe even 6, really great things :) ANyway, I'll say a little prayer for you and hope everything works out!! Miss you guys!

Jordan said...

I'm so sorry for all you're going through, but glad at least you know what's wrong. You are so brave and we will be keeping you and your cute family in our prayers!!! Luv ya!