I am sitting here so overwhelmed and in tears, today has been hard but on another note I am
happy to hear we have a concrete answer. This morning we had a doctors appt
for Wade with his neurologist. I made the appt for when Justin was at preschool
so that I only had to take Wade and Delaney to hopefully be a little easier. Our appt lasted 2 hours and we went over all the tests that have been done so far and nothing has come back abnormal in them. The Dr. said by their bible/book they use in diagnosing children with autism that Wade has almost every sign hands down and his diagnosis is AUTISM. I dont know why I am so overwhelmed, Josh and I suspected it all along and accept the fact, but I think actually sitting there and hearing it, just hit me (not to mention its that time of the month and I am having a medical issue/reaction to my injections) I told the dr. that is what we thought to and now our focus is on what we can do to help him. She gave me a script for physical, occupational and speech therapy, she wants us to contact Help Me Grow and see about getting that program
started and gave me a few other numbers for organizations that help and focus on autism. I thought my days were already busy and now it looks like its going to stay that way for awhile, but whatever we can do to help him is what matters. He is my little sunshine! :)
Since my diagnosis of my RH and Spondylitis Arthritis, my dr has started me on weekly injections that is a type of medicine that blocks my immune system from making TNFs and is supposed to slow down or stop the bone deterioationg process. My first injection I gave myself was fine, no injection site problems or side effects that I noticed. I gave myself the 2nd injection this past Thurs. morning, and again everything seemed fine, just had a little bruising until Sunday something felt strange on my leg and looked, it was a round sunburned looking rash that was warm to the touch but again, didnt think anything about it just thought it was a normal reaction. Well now its Tues. and the rash has grown pretty rapidally and is about 4 inches across and 3 inches tall and is now swollen, warm to the touch and getting bigger along with I dont feel good on top of it. With this medicine the main side effect is infection of different sorts that can even be serious since my immune system is surpressed. The dr. wants me to try ice today and benedryl and if that doesnt help or it still is rapidally getting bigger I have to be seen ASAP....because it could be a possible staph infection or something of the sort.
What a day, I think now, I am going to go cry some more and drink a diet coke! Even though it has been very hard, I still am very grateful for all that I have been given through my trials and love my family so much!
5 comments:
I don't even know what to say Jen! You are such a strong person, and I am so grateful to know you and have you as such a good example! I love you and your little Wade (and your other kiddies!) no matter what!
p.s. Please let me watch your kids when you have dr's appointments, I really wouldn't mind!!
Oh Jen, I am so sorry it has been such a hard day/week/two years! Aside from the chaos that will come from scheduling more things, it will probably be really good for Wade to get one-on-one attention from people trained in therapies to help him. Let me know if there is anything you need - I'm home by 2 each weekday and I'm just down the street! We'll keep your family in our prayers as you deal with your health issues and the transitions that are coming. I love you!
I am so sorry to hear about your rough day today Jen! I think it is great that you have such a positive attitude about it all and I admire you for that. Please hang in there and always remember that you have many friends, including myself, here to help and more importantly and that your Father in Heaven is always there for you. Love ya Jen!
Thank you ladies, I appreciate these comments, especially today! I love you all so much and am so lucky to have such great friends!
Yes...cry and drink a diet coke...or even a real one. Life can be so overwhelming at times. I know wade is in good hands, because you will do all that you can to teach him and help him and get him the therapies he needs...not to mention you also love the kid. :) Things will work out and you will be better parents/people for it. There will be a lot to learn and understand...and many discussions about what's best for him and your family life. You guys will figure it out. You are great parents!
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